Pms Pathways Podcast

On the seventh episode of the PMS Pathways Podcast, Jackie speaks with Sue Lomas. Sue's son Sam was one of the first to be diagnosed with Phelan McDermid Syndrome. She and Jackie speak about what it was like to get a diagnosis where only a handful of families had also received that diagnosis, and the early days of the Foundation. From setting up a non-profit organization, to forming a board, and introducing more and more families to the community. The PMSF has grown significantly since the early 2000's, and Sue shares some of these stories and more! If you have questions or suggestions for future episodes, please reach out to Jackie Jacobs, the Family Engagement Specialist, at jackie@pmsf.org. PMS Pathways Podcast is written, produced and edited by Jackie Jacobs and is a production of the Phelan McDermid Syndrome Foundation. For more information about the Foundation, our programs, and initiatives, please visit our website at www.pmsf.org. Simply click on the player below to listen. You may also select one of